Tag: #t1dmom

Donating Unused Supplies

Posted on By Diabetes Amigo
Donating Unused Supplies
Day-to-Day T1D

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Donating unused diabetic supplies is a fantastic way to help other diabetics.

Organizations / Other Ideas

Organizations

  • Insulin for Life – collects in-date & unneeded insulin, test strips, as well as other diabetes supplies, and ship them to developing countries. Donated supplies are distributed, free of charge, to children and adults with diabetes who otherwise would go without these lifesaving medications. To donate view:
  • CR3 Diabetes Association, Inc – collects supplies for people living with diabetes all over the world by providing knowledge, equipment and encouragement to those in need. To donate review their website for details.
  • SafeNexRx – provides affordable medication access to Iowans in need of assistance. Accepts sealed and unexpired lancets, syringes, needles, and glucose test trips.
  • Integrated Diabetes Services – collects many types of diabetes equipment and supplies (almost anything but lancets) to distribute by request to people with diabetes in the US and around the world.
    • To donate or request supplies, call 1-877-735-3648.
  • The Embrace Foundation – Diabetics helping Diabetics to send supplies to those who can’t obtain them. Donate supplies or complete a request form for T1D supplies.

Other Ideas

  • Dr’s Office – contact your Endo office to determine if they collect donated supplies.
  • Network – create your own network of individuals that could use your extra supplies by meeting them at local events like walks, Diabetes Camp, or Facebook groups.
  • Associations – contact your local JDRF or ADA associations.
  • T1D Rescue Warriors – Facebook group that helps Type 1 Diabetics find the insulin, diabetic supplies, referrals, and/or get questions and answers about hospitals and doctors in all towns across the world. 

Diabetes Medical Waste Recycling and Disposal

Posted on By Diabetes Amigo
Diabetes Medical Waste Recycling and Disposal
Day-to-Day T1D

This post may contain affiliate links. Please see my affiliate disclosure for more details.

Help reduce the environmental impact of Type 1 Diabetes management by knowing how to properly dispose of the medical waste produced.

The options for medical waste disposal varies by state. Check your states requirements and dispose of accordingly.

Waste Types / Sharps / CGM / Pumps / Travel

Waste Types

Regular, recyclable, medical/sharps and mixed waste are all present in diabetic supplies.

Look for a recycling symbol on test strip boxes, infusion set boxes, packaging inserts, plastic needle caps and dispose of in the recycling waste bin.

The options for medical/sharps waste disposal varies by state. Check your states requirements and dispose of accordingly.

Mixed waste can refer to any combination of different waste types. Typically medical devices like CGMs (Dexcom and Libre) and pumps like OmniPod are this type of waste. Call your trash/waste company to determine if they have a mixed waste disposal location or program.

Sharps

Here are few ideas from various states on how to dispose of your used sharps.

  • Sharps Container – purchase a sharps container with with or without return postage.
  • Alternative Sharps Container – the FDA provides guidelines for medial waste disposal when not using a sharps container. The basics are to find a non-permeable container with a lid, label the container with “sharps” and fill it. When full, dispose of according to your state’s rules. Non-permeable container ideas include:
    • Juice bottle
    • Coffee creamer bottle
    • Laundry detergent bottle
  • Needle Clip – A needle clip eliminates the need for a sharps container for syringes and pen needles. Simply clip the needle and the needle clip retains the clipped needle. Once the needle clip is full (1500 needles), the entire device is disposed of according to state laws. Great for home use or when traveling.
  • Endocrinologist – ask your Endo’s office if they assist in disposal of sharps.
  • Public Services – fire departments, police stations and/or your local hospital may offer disposal options.
  • Trash Company – call your trash/waste company to determine if they have a sharps and/or mixed waste disposal location.
  • Pharmacy – local pharmacies may offer drop-offs for sharps containers.
  • County Health Department – may offer sharps container exchange program (full container for an empty container).

CGMs

The Dexcom CGM G6 applicator is made of non recyclable plastic and is considered mixed waste (sharps, metal and regular waste). Check with your local trash/waste company to inquire about proper disposal for mixed waste. Used sensors can be placed in the Sharps container.

Dexcom’s G6 applicator can be broken down to separate the mixed waste. View a video on How to Recycle Your Dexcom G6 Inserter.

The Libre sensor pack is regular waste, the applicator is mixed waste and the used sensor should be disposed of in the sharps container.

Pump Site Changes

OmniPod – a used OmniPod is considered mixed-waste (sharps, plastic and batteries are all inside a pod). Insulet offers recycling of used pods for podders in Canada and the United Kingdom. The recycle program in the USA was retired in 2018. For podders in the USA, it is recommend to contact your local trash/waste company to inquire about proper disposal for mixed waste.

Look for recycling symbols on other pump infusion set and packaging and dispose of according.

Travel

When traveling, sharps containers can be found at airports, theme parks, first aid stations at large attractions and most hotels and cruise lines offer medical waste disposal container / services.

The needle clip or a travel sharps container / tube are great medical waste disposal options when traveling.

When proper waste management is not possible, we pack-up and bring home for disposal.


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Halloween Switch Witch

Posted on By Diabetes Amigo
Halloween Switch Witch
Holiday, Kid Stuff

This post may contain affiliate links. Please see my affiliate disclosure for more details.

The Switch Witch is a fun Halloween tradition that provides kids the opportunity to swap some or all their Halloween candy for a toy.

How It Works

  1. Towards the end of September read the Switch Witch book with your child.
  2. Talk with your child about the idea of swapping some or all their candy the night after trick-or-treating for a toy.
  3. Announce the arrival of the Switch Witch.
  4. On Halloween night, help your child decide which pieces of candy are for the Switch Witch to swap for a toy.
  5. The next morning the candy is gone, and a toy appears in its place.

Traditions

My kids look forward to the arrival of the Switch Witch every October 1st. Part of the excitement is searching the house looking for where the Switch Witch has landed.

The Switch Witch is stuffed toy that the kids play with throughout the month of October. Once a week, we read the Switch Witch book and talk about how much candy they think they want to swap on Halloween night. We also discuss the toys they think would be a good swap.

Our family’s tradition is to keep 10 pieces of candy per child and then decide how much candy to swap with the Switch Witch. The kids have the choice to:

  • Swap all their candy for a large toy
  • Swap some of their candy for a medium toy
  • Swap very little candy for a small toy
  • Keep all the candy for no toy

The choice is theirs and part of the fun is deciding which option they want each year.

On Halloween night, I do have to have small, medium and large new toys on-hand. The toy options not chosen are given as Christmas gifts instead.

Making it Work for Your Family

The Switch Witch has many possibilities for building Halloween traditions in your home. The Switch Witch story allows for many interpretations and customized activities that work in every home.

Adaptive Clothing T1D Style

Posted on By Diabetes Amigo
Adaptive Clothing T1D Style
Other Stuff

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Adaptive clothing comes in many forms from apparel with soft no-tag fabrics to t-shirts with pockets holding tubed pumps or cell phones. The need for apparel to do more beyond its basic function is becoming increasing common. Major retailers are offer clothing and accessories lines specifically for helping adults and kids with special needs. Further retailers are featuring models wearing CGMs and pumps.

Type 1 Diabetics and their caregivers have seen the need for adaptive clothing to make diabetes care easier and have created clothing solutions. Below is a list of adaptive clothing/accessories designers, T1D lifestyle brands, and a regular clothing items that just work well with diabetes devices.

T1D Designers / Retailers / Become a Designer / Groups

T1D Designers

  • Revel Wear – a pump pocket on various discreet layering undergarments for women, men and kids.
  • Anna PS – a fashion brand founded and run by a Type 1 Diabetic. Offering clothing and underwear that provides different options for carrying a diabetes technology/devices. This is a Sweden based company that ships to the worldwide.
  • Hid-in – underwear designer that also happens to be T1D. The designer’s biggest seller is the multi-way band for discreetly wearing tubed pumps.
  • Pancreas Pockets – helping you wear your insides on the outside! This Etsy store offers functional undergarments.
  • Passion Peelz – a Mom of a Type 1 Diabetic that is passionate about spreading awareness one t-shirt at a time! This Etsy store offers t-shirts, mugs, hats and so on.
  • Little T1D Pockets – creates products for T1D kids that is comfortable and helps create less stress for them and their parents.
  • DiaBeTees – Etsy store with a mission is to raise diabetes awareness through modern, cute, humorous and fun tees.
  • TypeOnderful Clothes – brand focused on creating light-hearted, empowering, well-designed products for Type 1 Diabetics. 
  • Greater Than – lifestyle brand dedicated to empowering all individuals and portion of sales are donated to research and support.
  • CariCami – camisoles that provide a stylish and discreet way to carry insulin pumps and phones.
  • Sugardrop Sweetwear Co – tees, hoodies, accessories and jewelry to raise awareness on the early signs of Type 1 Diabetes and to encourage anyone who is displaying these signs to insist on having a finger prick test. 
  • Glico Italy – offers a wide range of diabetic bands and patches. The leg band in particular is a nice design for women/girls that need an option for dresses.

Major Retailers/Brands

The need for adaptive clothing has caught the attention of major designers and retailers:

  • Athleta – workout brand that was inspired by an 8 year old T1D to create a hoodie with functional pockets to hold diabetic medical devices. Love that the hoodie is “diabetes awareness blue” and named “Own Your Power.”
  • Target – the Cat and Jack clothing line that offers kids adaptive clothing options.
  • Kohl’s – adaptive designs from various Kohl’s brands for kids and teens.
  • Land’s End – offering school uniforms where “every kid fits in.”
  • Tommy Hilfiger – innovative collection designed to look good for work, weekends and being active for adults and kids.
  • Zappos – functional and fashionable products from various brands that help individuals with disabilities. They offer a line of diabetic friendly shoes.
  • Marks and Spencer – contemporary and wearable adaptive styles.
  • Mighty Well – cozy jacket that works well with medical devices that was designed by a designer with a chronic illness.
  • Greta Grace – clothing line initially developed for children with g-tubes but these designs would work well for tubed insulin pumps as well.
  • Aerie / American Eagle – adaptive designs for various needs including T1Ds.
  • Amazon – apparel that just happens to work well with diabetic devices and needs. #ad

Become an Adaptive Clothing Designer

If you are inspired to start creating an adaptive wear brand, scholarships are available.

Need A Specific Clothing Item?

M&S and Me – closed Facebook group that helps parents find clothing options for kids with special clothing needs. If you are looking for a specific clothing solution, posting in this group might provide solutions or help generate ideas for specific clothing needs.

Diabetes Everyday Bag

Posted on By Diabetes Amigo
Diabetes Everyday Bag
Day-to-Day T1D

This post may contain affiliate links. Please see the affiliate disclosure for more details.

Living with Type 1 diabetes means staying prepared for anything, from routine errands to unexpected adventures, and packing the right supplies in your Diabetes Everyday Bag ensures you have the all the supplies that you need to keep blood sugars in range.

Diabetes Bag

The Medicol Dia-Pak Deluxe bag has been with us since the first week of diagnosis and has worked well for 5 years now. I needed a bag that could hold everything, switch easily between caregivers and have a cool-pack for travel. This bag holds all the Type 1 Diabetes (T1D) supplies and fits nicely in a diaper bag, purse, backpack or can be carried by itself (top handle or with the removable strap on a single arm or as a cross-body bag).

The bag comes in various sizes:

Keeping it Clean

Our daily diabetes bag gets dirty! The Dia-Pak bag floats around our house, travels everywhere with us, goes to school, attends play-dates, and then sits in my child’s room at night. I wash this bag on average once a month, in a regular laundry cycle, inside a mesh bag (to protect it) and then air dry. It has held up beautifully over the past 5 years.

Supplies

Cleaning out your bag also means restocking all the necessary diabetes supplies. Including replacing expired medication, food, batteries, and low supplies. Listed below are the contents that we keep in our D-bag daily.

  • Glucose Meter
    • We have the OmniPod PDM with the integrated glucose meter but we keep a spare meter in the kit just in case of malfunction (or if lost).
  • Glucose test strips
  • Lancer
  • Lancets
  • Syringes
    • Used for manual injections in case of pump failure and if the Glucagon syringe breaks.
  • Fast acting sugar
  • Baqsimi Nasal Spray
  • Glucagon Emergency Kit
    • I maintain a prescriptions for both the nasal spray and Glucagon medications because the Glucagon can be used in case of unconsciousness due to severe low blood sugar and during sick days (mini-glucagon shots to raise blood sugar).
  • Beef Jerky
    • Small pouches of beef jerky to use as protein snack after treating a low or as a low carb snack.
  • Insulin
  • Alcohol pads
    • Used for preparing skin for Dexcom CGM and OmniPod changes and if we need clean fingers when washing hands is not an option.
  • OmniPod Pod
    • Extra pod in case of pump failure.
  • OmniPod OverPatch
    • Lexcam – 20 waterproof patches that are pre-cut for Omnipod. Hypoallergenic and clear in color.
  • Safety Pin
    • Used to stop a screaming pod by puncturing the speaker.
  • Dexcom OverPatch
    • Free pack of 10 clear overpatches from Dexcom. Request when ordering supplies or order from the Patient Support Form. Enter “order overpatches” in the issue field.
  • SkinTac Wipe
  • Batteries
  • Money
    • We keep a dollar in quarters and $2 in one dollar bills in case we need to buy a snack to treat low blood sugar when traveling or at school.
  • Contact Information
    • Clear insert that fits a business card or hand written contact information in case the kit is lost (not shown).

Extra Supplies Used on Long Trips

  • Dexcom – a spare Dexcom sensor and transmitter. For everyday trips/running errands, we are so close to home that I don’t find it necessary to have Dexcom backup supplies.
  • Portable Charger – a wireless battery powered phone charger helps when traveling in case our Dexcom phone’s battery goes low.
  • Frio Cooling Wallet – if activities include being out in the hot sun for long periods of time, the insulin vial is kept cool with a cooling wallet.
  • Straws – a travel toothbrush holder with straws. During naps or nighttime, treating a low with juice works best for my kiddo. Some juice bottles do not include straws. Also, the toothbrush holder is great for storing honey sticks.
  • Phone Dry Bag – if activities include water, a phone dry bag is helpful for cells phones, PDM or Dexcom receiver.

Type 1 Valentine’s Day

Posted on By Diabetes Amigo
Type 1 Valentine’s Day
Day-to-Day T1D

This post may contain affiliate links. Please see the affiliate disclosure for more details.

    I like to create traditions around the holidays that I feel can easily be modified as my children grow. For Valentine’s Day, I created a tradition of giving a small basket/box that is filled with holiday themed items. I save the box and reuse it every year (which is part of the tradition). I place the box in their bedroom before I go to bed and they wake up on the holiday seeing the Valentine’s box.

    This year, I have an 8-year-old and a 4-year-old that will receive Valentine’s Day boxes. At these ages my kids find equality important, so the boxes are filled with identical items that work for both age ranges. I do personalize each box with one item that is different. As the kids get older, I can see these boxes becoming 100% personalized containing items that match the sports they play or their hobbies. Right now, the holiday themed items from the “dollar bins” make them happy.

    Gift Ideas with a T1D Theme

    If you looking to fill a box or give a gift, here is a list of T1D themed items:

    iPhone Clean Up

    Posted on By Diabetes Amigo
    iPhone Clean Up
    Day-to-Day T1D

    This post may contain affiliate links. Please see the affiliate disclosure for more details.

    Dexcom users that use an iPhone as a receiver can benefit from an iPhone clean-up.

    Storage / Background / Bluetooth / Medical ID / Controls / Wallpaper

    Storage Space

    Dexcom requires open storage space to run and work properly. Check your storage space and delete any unnecessary applications if necessary.

    Background App Refresh

    The Background App Refresh setting on an iPhone allows the Dexcom app to refresh when on Wi-Fi or cellular in the background even when you are not using the app. Make sure this setting is turned on at Settings > General > Background App Refresh.

    Bluetooth

    Old transmitters that remain as paired devices can effect your phone’s battery efficiency. Unpair old transmitters in the Bluetooth settings.

    Medical ID

    Help first responders access medical information from a locked iPhone screen by setting up your Medical ID. This feature on your iPhone details allergies, medical conditions and emergency contact information.

    Parental Controls

    Review the parental control settings to make sure your child’s phone is being used as intended.

    Wallpaper

    Set the wallpaper on a locked iPhone screen to denote the phone is being used as medical device. View a sample wallpaper posted on Pinterest. Download the Pinterest file to your phone and use the phone’s picture markup tools to add other pertinent details like your child’s name, parent’s phone number or an “if found” phone number.

    View other Diabetes Organization/Clean Up tips in the New Year Organization post.

    New Year Organization

    Posted on By Diabetes Amigo
    New Year Organization
    Holiday

    This post may contain affiliate links. Please see the affiliate disclosure for more details.

    The start of a new year is filled with opportunities for a fresh start that can include diabetes management. Here are a few effective ideas that you can implement now that will help you through out the year. #ad

    Insurance / FSA / D-Bag / Pump / Supplies / School /
    Data / iPhone / Stay Informed

    Insurance Review

    • Formulary
      • Review your insurance formulary to make sure there are no changes in your prescription coverage. Many insurance companies change their preferred/tier 1 insulin between Humalog/Novolog/Admelog based on new contract pricing for the year.
    • Renewals
      • Renew your prescriptions if necessary. Some insurance companies require new prescriptions every year, even if there are refills on file. This includes renewals of “Letters of Medical Necessity” as well.
    • Durable Medical Equipment (DME)
      • Continuous Glucose Monitors (CGMs) (i.e., Dexcom, Guardian Connect and Libre) and pump supplies are typically considered DME and cannot be purchase at a local pharmacy. Depending on your insurance, DMEs are covered through a medical supplier or through 90-day prescription benefits. Some insurance plans allow you to fill DME prescriptions through either a medical supplier or through the 90-day pharmacy. It is worth the effort to determine your cheapest price for DME supplies.
    • Refill Dates
      • Auto Refill
        • Determine if your local pharmacy or 90-day prescription supplier offers auto refills. Adding this feature to your refills is a huge time saver through out the year.
      • Calendar
        • Consider starting a family calendar and note refills dates through out the year to keep needed supplies stocked.

    FSA Dollars

    Diabetes Bag

    • Clean
      • Completely empty the bag and wash it! Place the diabetes bag in a laundry mesh bag before placing in the washing machine and then set outside to air dry.
    • Restock all supplies
      • Make sure your bag has all the necessary diabetes supplies.
      • Check expiration dates on medication, food, batteries, and low supplies.
    • Replace your lancet

    Pump

    • Pump Settings
      • Take pictures of your pump settings/basal rates for reference in case of a pump failure. This is also helpful if basal changes are made and you need to change back to previous basal rates.
      • Check that the time and date settings are correct.

    Supply Closet

    School

    • 504 Plans
      • Review your 504 Plan to make sure any recent changes are included in your plan. Also consider updating the 504 Plan to resolve any ongoing issues. 504 Plan updates are worth the effort to have a good year.
    • School Orders
      • Make sure your school order on file with the Endo matches the 504 plan or request changes include any new updates.
    • Medical Forms for Sports
      • Avoid the August rush for sport forms by getting them done early in the year. Sport forms are typically good for one year and can be completed in advance of spring/summer sports.

    iPhone Clean Up

    • Dexcom users that use an iPhone as a receiver can benefit from an iPhone clean-up
      • Storage Space – Dexcom requires open storage space to run and work properly. Check your storage space and delete any unnecessary applications if necessary.
      • Old Transmitters – unpair old transmitters in the Bluetooth settings. Old transmitters that remain as paired devices can effect your phone’s battery efficiency.
      • Medical ID – set up your Medical ID to help first responders access medical information from a locked iPhone screen.
      • Parental Controls – review parental controls to make sure your child’s phone is being used as intended.

    Data Review

    • CGM Data
      • Take time to log on to CGM reports like Clarity, Guardian Connect or LibreLink to review the data for basal rates and Insulin to Carb ratios (I:C).
      • Make a list of questions to ask the Endocrinologist about your data during your next appointment.
      • Review Time-in-Range and and set a goal to increase this number. Even if the increase is just 2% more because the A1C value is not the only number you should care about every three months.

    Stay Informed

    Using, Storing and Protecting Insulin

    Posted on By Diabetes Amigo
    Using, Storing and Protecting Insulin
    Day-to-Day T1D

    You were most likely provided with instructions for properly storing your unopened insulin in the refrigerator but little instructions once the insulin vial is opened. Insulin vials require extra care from the time they are removed from the box/refrigerator and used. Consider the following ways to keep your insulin safe. #ad

    Best Practices / Temp Control / Protectors / Storage

    Best Practices

    • Refrigerated Vial of Insulin – an unused vial of insulin kept in the refrigerator is good until the expiration date. A used vial of insulin kept in the refrigerator is good for 28 days.
    • Un-refrigerated Vial of Insulin – assuming a used/open vial of insulin is kept at reasonable temperature variations (no direct sun/heat or freezing temperatures) it is effective for 28 days.
    • Receiving Insulin – make sure when you purchase/receive your insulin it was continuously refrigerated and cold to the touch.
      • Local Pharmacy – confirm the insulin was continuously refrigerated and not placed on the shelf for pick-up. Also check the expiration date.
      • Mail Order / 90-day Prescriptions – insulin should arrive packed with ice packs that are still frozen and the insulin boxes do not feel warm.

    Temperature Control

    • Wireless Refrigerator Thermometer – make sure your refrigerator maintains temperature control by installing an alarm with audible and visual alarms. When temperatures exceed your pre-set minimum and maximum alarm settings you are notified with beeps.
    • Frio Case – fabric case that includes an internal wallet that when dipped in water remains cool for 48 hours. Great for daily use to protect open insulin vial or pump from extreme temperatures or to add padding around a vial. Various colors and sizes available.
    • Insulin Ice Pack Coolers – protect open or unopened insulin from extreme temperatures, while traveling or on long car rides. Cases also have removable/reusable ice packs and space for storing other diabetic supplies.
    • CaseMD – compact vacuum-insulated container that protects and maintains temperature control for vials and pens.

    Daily Use Protectors

    • Securitee Blanket – sleeve that projects and provides a secure grip for one insulin vial. The vial is not removed from the sleeve to fill a syringe. Available in two sizes and various colors.
    • Vial Safe – silicone reusable lightweight cover that allows for a secure grip and helps prevent breakage and shattering. Includes 2 different size protectors that fit various brands of short and long acting insulin.

    Storage

    • HangTite Pen Holder – pen holder that is designed to mount inside the refrigerator to organize five insulin pens.
    • Vial Vase – keeps vials upright and secure in your refrigerator, on your counter-top, or anywhere you store your insulin.
    • Organizer Supply Box – divided plastic box for holding vials in the refrigerator.
    • 3D Printer – consider printing your own insulin storage device with free downloadable templates. Some public libraries have free 3D printers or you can find a vendor to print it for you.

    Diabetic Alert Dog (DAD)

    Posted on By Diabetes Amigo
    Diabetic Alert Dog (DAD)
    Other Stuff

    This post may contain affiliate links. Please see the affiliate disclosure for more details.

    Diabetic Alert Dogs (DADs) are service animals that are trained to alert diabetics of low (hypoglycemia) or high (hyperglycemia) blood sugar in a timely manner to avoid dangerous situations. The dogs have a heightened sense of smell that gives them the ability to add another layer of protection in your diabetes management.

    Research / Providers / DIY / Fundraising Ideas / Grants

    Research

    If you are thinking about adding a DAD to your family, there are few more things to consider than just the cost (typically $10k to $20k USD). I recommend reading articles that explore other considerations like ongoing costs and training, questions to ask trainers, types of alerts, etc:

    Providers

    There are no national standards for training DADs. Therefore, picking a provider of your DAD requires lots of research including performing reference checks. Listed are various DAD providers (the list is not an endorsement of any one provider):

    Do It Yourself (DIY) Books, Videos and Facebook Groups

    Fundraising Ideas

    • Online fundraising like GoFundMe or FirstGiving
    • T-shirt fundraiser
    • Garage sale
    • Chili dog supers
    • Golf tournament
    • Get your local news or local paper to do a story on your fundraising efforts
    • Grow flowers and sell them
    • Lemonade stand
    • Yardwork/Mow lawns
    • Zumba fundraiser
    • Ask neighbors to save recyclable items and redeem for cash
    • Pet sitting
    • “Pay What You May” bake sale

    Grants

    • T1D Mod Squad offers a grant
    • Emma’s Journey grant
    • The Pet Fund lists various grants and finanical assistance options
    • If living in Iowa – Council Bluffs Cosmopolitan Club offers a grant